Tuesday, October 9, 2012

Pediatric Neurology

As some of you may know, Adi was scheduled to see a pediatric neurologist due to her seizure on Labor Day. We had an EEG done Tuesday, October 2nd and a follow up appointment with the neurologist on Friday, October 5th. 

We got good news and what COULD BE bad news. The good news...her 20 minute EEG came back normal! The "could be" bad news is that the neurologist is not satisfied with only monitoring her for 20 minutes and believes there is an underlying issue SOMEWHERE but not sure where. So, Adi now needs to see a pediatric cardiologist to check her heart to be sure it is working at 100% and she also has to have an overnight stay at the UW Children's Hospital here in Madison. The overnight stay will consist of Adi having the EEG machine with all of the wires hooked to her head for 24 hours. This means her head will need to be wrapped in gauze and they are also going to hook a heart monitor up to her as well per the cardiologist request since she will already be in the hospital. No sense in putting her through this more than once! All of this will be under video surveillance so she cannot leave her room for those 24 hours.

They are certain she is having/did have seizures but not 100% and want to be sure they treat her correctly if they are severe enough. They want to be sure there will be no long term effects! IF this shows her having seaizures they have a 2 year medication plan they can put in place with NO side effects but it is a huge commitment and we do not want to put her on meds if we dont have to!

So, it's not horrible news but it is scary for everyone! No doubt in our minds that Adi is going to be a trooper!

This means all of our wonderful family is going to step up and help us out with Ryleigh who will be spending her first night away from mommy with Grandma and Grandpa Robson! She will have all sorts of fun not having to share grandma and grandpa!

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